208 lines
18 KiB
XML
208 lines
18 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100013596</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">German Central Health Study Hub COVID-19</r3d:repositoryName>
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<r3d:repositoryURL>https://covid19.studyhub.nfdi4health.de/</r3d:repositoryURL>
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<r3d:description language="eng">The German Central Health Study Hub COVID-19 (Study Hub) is an inventory of German COVID-19 studies covering structured health data from administrative databases, clinical trials incl. vaccination studies, primary care, epidemiological studies, and public health surveillance. The aim is to enable the findability of studies and access to structured health data to improve the management of public health data on the COVID-19 pandemic. Unlike other initiatives, the Study Hub will focus not only on clinical research but also on studies relating to the consequences of the pandemic for public health, such as utilisation of healthcare services, quality of life, and the effects of social isolation. Furthermore, the Study Hub provides access to the study documents and data collection instruments like (sample) questionnaires, including information down to the variable level.
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The Study Hub has been created in the project NFDI4Health Task Force COVID-19 (DFG project number 451265285), which is an additionally funded use case of the National Research Data Infrastructure for Personal Health Data – NFDI4Health (DFG project number 442326535).</r3d:description>
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<r3d:repositoryContact>contact@nfdi4health.de</r3d:repositoryContact>
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<r3d:repositoryContact>fb.studyhub@nfdi4health.de</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated="2021-06-30">768 studies, 21 data collection instruments (questionnaires/case report forms)</r3d:size>
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<r3d:startDate>2020-10-01</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20501 Epidemiology, Medical Biometry, Medical Informatics</r3d:subject>
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<r3d:subject subjectScheme="DFG">20502 Public Health, Health Services Research, Social Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20513 Pneumology, Clinical Infectiology Intensive Care Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:missionStatementURL></r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Plain text</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Standard office documents</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Structured text</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:providerType>serviceProvider</r3d:providerType>
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<r3d:keyword>COVID-19</r3d:keyword>
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<r3d:keyword>SARS-CoV-2</r3d:keyword>
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<r3d:keyword>clinical studies</r3d:keyword>
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<r3d:keyword>epidemiology</r3d:keyword>
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<r3d:keyword>health data</r3d:keyword>
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<r3d:keyword>nfdi</r3d:keyword>
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<r3d:keyword>nfdi4health</r3d:keyword>
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<r3d:keyword>public health</r3d:keyword>
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<r3d:keyword>study registry</r3d:keyword>
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<r3d:keyword>survey instruments</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">Berlin Institute of Health at Charité</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">BIH</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.bihealth.org/en/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:0493xsw21</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Deutsche Forschungsgemeinschaft</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">DFG</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>http://www.dfg.de/en/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:018mejw64</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Fraunhofer Institute for Digital Medicine MEVIS</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">Fraunhofer-Institut für Digitale Medizin MEVIS</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.mevis.fraunhofer.de/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:04farme71</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Heidelberg Institute for Theoretical Studies</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">HITS</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="eng">HITS gGmbH</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">Heidelberger Institut für Theoretische Studien</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.h-its.org/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:01f7bcy98</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">KKS-Netzwerk e.V.</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">KKS Network</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">KKSN</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.kks-netzwerk.de/</r3d:institutionURL>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Leibniz Institute for Prevention Research and Epidemiology</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">BIPS</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">Leibniz-Institut für Präventionsforschung und Epidemiologie</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.bips-institut.de/en/home.html</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:02c22vc57</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Robert Koch Institute</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">RKI</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">Robert Koch Institut</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.rki.de/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:01k5qnb77</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">University Medical Center Göttingen</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">UMG</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">Universitätsmedizin Göttingen</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.umg.eu/en/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:021ft0n22</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">University Medicine of Greifswald</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">Universitätsmedizin Greifswald</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.medizin.uni-greifswald.de/de/home/</r3d:institutionURL>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">University of Leipzig,Medical Faculty; Institute for Medical Informatics, Statistics and Epidemiology</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">IMISE</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="deu">Universität leipzig, Medizinische Fakultät, Institut für Medizinische Informatik, Statistik und Epidemiologie</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.imise.uni-leipzig.de/en/homepage</r3d:institutionURL>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">ZB MED — Information Centre for Life Sciences</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">ZB MED - Informationszentrum Lebenswissenschaften</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.zbmed.de/en/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:0259fwx54</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate>2020-07-01</r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate>2023-06-30</r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>open</r3d:databaseAccessType>
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</r3d:databaseAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>open</r3d:dataAccessType>
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</r3d:dataAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>other</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>CC</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://creativecommons.org/</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataLicense>
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<r3d:dataLicenseName>Copyrights</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://covid19.studyhub.nfdi4health.de/</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>restricted</r3d:dataUploadType>
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<r3d:dataUploadRestriction>other</r3d:dataUploadRestriction>
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</r3d:dataUpload>
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<r3d:versioning>no</r3d:versioning>
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<r3d:pidSystem>DOI</r3d:pidSystem>
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<r3d:citationGuidelineURL></r3d:citationGuidelineURL>
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<r3d:enhancedPublication>yes</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:metadataStandard>
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<r3d:metadataStandardName metadataStandardScheme="DCC">DataCite Metadata Schema</r3d:metadataStandardName>
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<r3d:metadataStandardURL>http://www.dcc.ac.uk/resources/metadata-standards/datacite-metadata-schema</r3d:metadataStandardURL>
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</r3d:metadataStandard>
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<r3d:metadataStandard>
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<r3d:metadataStandardName metadataStandardScheme="DCC">Dublin Core</r3d:metadataStandardName>
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<r3d:metadataStandardURL>http://www.dcc.ac.uk/resources/metadata-standards/dublin-core</r3d:metadataStandardURL>
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</r3d:metadataStandard>
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<r3d:metadataStandard>
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<r3d:metadataStandardName metadataStandardScheme="DCC">ISA-Tab</r3d:metadataStandardName>
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<r3d:metadataStandardURL>http://www.dcc.ac.uk/resources/metadata-standards/isa-tab</r3d:metadataStandardURL>
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</r3d:metadataStandard>
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<r3d:remarks></r3d:remarks>
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<r3d:entryDate>2021-06-30</r3d:entryDate>
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<r3d:lastUpdate>2021-07-27</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |