95 lines
7.8 KiB
XML
95 lines
7.8 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100013028</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">BBMRI-ERIC Directory</r3d:repositoryName>
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<r3d:additionalName language="eng">Biobanking and BioMolecular resources Research Infrastructure - European Research Infrastructure Consortium Directory</r3d:additionalName>
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<r3d:additionalName language="eng">Directory of Biobanks</r3d:additionalName>
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<r3d:repositoryURL>https://directory.bbmri-eric.eu/menu/main/app-molgenis-app-biobank-explorer/biobankexplorer</r3d:repositoryURL>
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<r3d:repositoryIdentifier>FAIRsharing_doi:10.25504/FAIRsharing.q9VUYM</r3d:repositoryIdentifier>
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<r3d:description language="eng">BBMRI-ERIC is a European research infrastructure for biobanking. We bring together all the main players from the biobanking field – researchers, biobankers, industry, and patients – to boost biomedical research. To that end, we offer quality management services, support with ethical, legal and societal issues, and a number of online tools and software solutions. Ultimately, our goal is to make new treatments possible. The Directory is a tool to share aggregate information about the biobanks that are willing external collaboration. It is based on the MIABIS 2.0 standard, which describes the samples and data in the biobanks at an aggregated level.</r3d:description>
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<r3d:repositoryContact>contact@bbmri-eric.eu</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated="2019-04-05">515 biobanks with over 60 million biological samples;</r3d:size>
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<r3d:startDate>2015</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">1 Humanities and Social Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">201 Basic Biological and Medical Research</r3d:subject>
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<r3d:subject subjectScheme="DFG">204 Microbiology, Virology and Immunology</r3d:subject>
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<r3d:subject subjectScheme="DFG">21 Biology</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:missionStatementURL>https://directory.bbmri-eric.eu/menu/main/background#</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Audiovisual data</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Databases</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Images</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Scientific and statistical data formats</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">other</r3d:contentType>
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<r3d:providerType>serviceProvider</r3d:providerType>
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<r3d:keyword>COVID-19</r3d:keyword>
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<r3d:keyword>FAIR</r3d:keyword>
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<r3d:keyword>blood</r3d:keyword>
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<r3d:keyword>cdna</r3d:keyword>
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<r3d:keyword>cell</r3d:keyword>
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<r3d:keyword>clinical data</r3d:keyword>
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<r3d:keyword>dna</r3d:keyword>
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<r3d:keyword>health</r3d:keyword>
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<r3d:keyword>plasma</r3d:keyword>
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<r3d:keyword>rna</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">BBMRI-ERIC</r3d:institutionName>
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<r3d:institutionCountry>EEC</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>http://www.bbmri-eric.eu/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:00pwncn89</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:SCR_004226</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:nlx_24389</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>http://www.bbmri-eric.eu/contact/</r3d:institutionContact>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>BBMRI-ERIC Quality Management</r3d:policyName>
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<r3d:policyURL>http://www.bbmri-eric.eu/services/quality-management/</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>GDPR Code of Conduct</r3d:policyName>
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<r3d:policyURL>http://code-of-conduct-for-health-research.eu/</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>open</r3d:databaseAccessType>
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</r3d:databaseAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>open</r3d:dataAccessType>
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</r3d:dataAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>registration</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>Public Domain</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://directory.bbmri-eric.eu/menu/main/background</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>restricted</r3d:dataUploadType>
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<r3d:dataUploadRestriction>registration</r3d:dataUploadRestriction>
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</r3d:dataUpload>
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<r3d:software>
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<r3d:softwareName>other</r3d:softwareName>
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</r3d:software>
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<r3d:versioning>yes</r3d:versioning>
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<r3d:api apiType="REST">https://directory.bbmri-eric.eu/menu/main/references</r3d:api>
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<r3d:pidSystem>none</r3d:pidSystem>
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<r3d:citationGuidelineURL>https://directory.bbmri-eric.eu/menu/main/references</r3d:citationGuidelineURL>
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<r3d:enhancedPublication>unknown</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:remarks>BBMRI-ERIC is a European organisation established under the ERIC legal framework, funded by yearly membership fees paid by the Member States. National Nodes and contact for Local Bioabanks: http://www.bbmri-eric.eu/national-nodes/</r3d:remarks>
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<r3d:entryDate>2019-04-03</r3d:entryDate>
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<r3d:lastUpdate>2020-06-25</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |