130 lines
10 KiB
XML
130 lines
10 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100012213</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">freeBIRD</r3d:repositoryName>
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<r3d:additionalName language="eng">free Bank of Injury and Emergency Research Data</r3d:additionalName>
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<r3d:repositoryURL>https://freebird.lshtm.ac.uk/home/</r3d:repositoryURL>
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<r3d:description language="eng">The FREEBIRD website aims to facilitate data sharing in the area of injury and emergency research in a timely and responsible manner. It has been launched by providing open access to anonymised data on over 30,000 injured patients (the CRASH-1 and CRASH-2 trials).</r3d:description>
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<r3d:repositoryContact>CTU@Lshtm.ac.uk</r3d:repositoryContact>
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<r3d:repositoryContact>https://freebird.lshtm.ac.uk/home/contact/</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated=""></r3d:size>
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<r3d:startDate>2010</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20502 Public Health, Health Services Research, Social Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20509 Pharmacology</r3d:subject>
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<r3d:subject subjectScheme="DFG">206 Neurosciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:missionStatementURL>https://freebird.lshtm.ac.uk/home/about/</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Scientific and statistical data formats</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Standard office documents</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">other</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:keyword>controlled clinical trial</r3d:keyword>
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<r3d:keyword>emergency</r3d:keyword>
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<r3d:keyword>head injury</r3d:keyword>
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<r3d:keyword>health research</r3d:keyword>
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<r3d:keyword>impaired consciousness</r3d:keyword>
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<r3d:keyword>medical knowledge</r3d:keyword>
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<r3d:keyword>patient care</r3d:keyword>
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<r3d:keyword>trauma</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">BUPA Foundation</r3d:institutionName>
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<r3d:institutionCountry>GBR</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.bupaukfoundation.org/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:04fskt963</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.bupaukfoundation.org/page/contact/</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">J P Moulton Charitable Foundation</r3d:institutionName>
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<r3d:institutionCountry>GBR</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>http://www.perscitusllp.com/moulton-charitable-foundation/</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>helen@jonmoulton.gg</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">London School of Hygiene and Tropical Medicine, Clinical Trials Unit</r3d:institutionName>
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<r3d:institutionCountry>GBR</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://ctu.lshtm.ac.uk/</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>ctu@lshtm.ac.uk</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Medical Research Council</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">MRC</r3d:institutionAdditionalName>
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<r3d:institutionCountry>GBR</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.mrc.ac.uk/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:03x94j517</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.mrc.ac.uk/about/contact/</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">Pfizer</r3d:institutionName>
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<r3d:institutionCountry>GBR</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.pfizer.com/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:04x4v8p40</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.pfizer.com/contact/contact_us_support</r3d:institutionContact>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>Freebird Data Sharing Agreement Terms</r3d:policyName>
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<r3d:policyURL>https://freebird.lshtm.ac.uk/home/freebird-data-sharing-terms-2/</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>ICH Good Clinical Practice Guidelines</r3d:policyName>
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<r3d:policyURL>http://www.crash2.lshtm.ac.uk/ICHGCP/TableOfContents.htm</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>Policies and guidance for researchers</r3d:policyName>
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<r3d:policyURL>https://www.ukri.org/about-us/mrc/our-policies-and-standards/</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>restricted</r3d:databaseAccessType>
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<r3d:databaseAccessRestriction>registration</r3d:databaseAccessRestriction>
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</r3d:databaseAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>registration</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>other</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://freebird.lshtm.ac.uk/home/freebird-data-sharing-terms-2/</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>restricted</r3d:dataUploadType>
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<r3d:dataUploadRestriction>registration</r3d:dataUploadRestriction>
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</r3d:dataUpload>
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<r3d:versioning></r3d:versioning>
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<r3d:citationGuidelineURL></r3d:citationGuidelineURL>
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<r3d:enhancedPublication>yes</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:remarks>CRASH-1: Corticosteroid Randomisation After Significant Head Injury // CRASH-2: Clinical Randomisation of an Antifibrinolytic in Significant Haemorrhage</r3d:remarks>
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<r3d:entryDate>2016-11-08</r3d:entryDate>
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<r3d:lastUpdate>2022-04-01</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |