RegistriesOverlap/data/re3dataRecords/r3d100011242.xml

<?xml version="1.0" encoding="utf-8"?>
<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
    <r3d:repository>
        <r3d:re3data.orgIdentifier>r3d100011242</r3d:re3data.orgIdentifier>
        <r3d:repositoryName language="eng">The European Genome-phenome Archive</r3d:repositoryName>
                    <r3d:additionalName language="eng">EGA</r3d:additionalName>
                <r3d:repositoryURL>https://ega-archive.org/</r3d:repositoryURL>
                    <r3d:repositoryIdentifier>FAIRsharing_doi:10.25504/FAIRsharing.mya1ff</r3d:repositoryIdentifier>
                    <r3d:repositoryIdentifier>MIR:00000512</r3d:repositoryIdentifier>
                    <r3d:repositoryIdentifier>RRID:SCR_004944</r3d:repositoryIdentifier>
                    <r3d:repositoryIdentifier>RRID:nlx_91316</r3d:repositoryIdentifier>
                <r3d:description language="eng">The European Genome-phenome Archive (EGA) is designed to be a repository for all types of sequence and genotype experiments, including case-control, population, and family studies. We will include SNP and CNV genotypes from array based methods and genotyping done with re-sequencing methods. 
The EGA will serve as a permanent archive that will archive several levels of data including the raw data (which could, for example, be re-analysed in the future by other algorithms) as well as the genotype calls provided by the submitters. We are developing data mining and access tools for the database.
For controlled access data, the EGA will provide the necessary security required to control access, and maintain patient confidentiality, while providing access to those researchers and clinicians authorised to view the data. In all cases, data access decisions will be made by the appropriate data access-granting organisation (DAO) and not by the EGA. The DAO will normally be the same organisation that approved and monitored the initial study protocol or a designate of this approving organisation. The European Genome-phenome Archive (EGA) allows you to explore datasets from genomic studies, provided by a range of data providers. Access to datasets must be approved by the specified Data Access Committee (DAC).</r3d:description>
                    <r3d:repositoryContact>helpdesk@ega-archive.org</r3d:repositoryContact>
                            <r3d:type>disciplinary</r3d:type>
                <r3d:size updated="2022-03-30">7.992 datasets; 1691 DACs;  5.189 studies</r3d:size>
        <r3d:startDate></r3d:startDate>
        <r3d:endDate></r3d:endDate>
                    <r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
                            <r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
                    <r3d:subject subjectScheme="DFG">201 Basic Biological and Medical Research</r3d:subject>
                    <r3d:subject subjectScheme="DFG">20104 Structural Biology</r3d:subject>
                    <r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
                    <r3d:subject subjectScheme="DFG">20503 Human Genetics</r3d:subject>
                    <r3d:subject subjectScheme="DFG">21 Biology</r3d:subject>
                    <r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
                <r3d:missionStatementURL>https://ega-archive.org/about/introduction</r3d:missionStatementURL>
                    <r3d:contentType contentTypeScheme="parse">Databases</r3d:contentType>
                    <r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
                    <r3d:contentType contentTypeScheme="parse">Scientific and statistical data formats</r3d:contentType>
                            <r3d:providerType>dataProvider</r3d:providerType>
                    <r3d:providerType>serviceProvider</r3d:providerType>
                            <r3d:keyword>bioinformatics</r3d:keyword>
                    <r3d:keyword>biomedical research projects</r3d:keyword>
                    <r3d:keyword>clinical studies</r3d:keyword>
                    <r3d:keyword>genomics</r3d:keyword>
                            <r3d:institution>
                <r3d:institutionName language="eng">Centre for Genomic Regulation</r3d:institutionName>
                                    <r3d:institutionAdditionalName language="eng">CRG</r3d:institutionAdditionalName>
                                <r3d:institutionCountry>ESP</r3d:institutionCountry>
                                    <r3d:responsibilityType>general</r3d:responsibilityType>
                                <r3d:institutionType>non-profit</r3d:institutionType>
                <r3d:institutionURL>https://www.crg.eu/</r3d:institutionURL>
                                    <r3d:institutionIdentifier>ROR:03wyzt892</r3d:institutionIdentifier>
                                    <r3d:institutionIdentifier>RRID:SCR_011147</r3d:institutionIdentifier>
                                    <r3d:institutionIdentifier>RRID:nlx_152187</r3d:institutionIdentifier>
                                <r3d:responsibilityStartDate>2013</r3d:responsibilityStartDate>
                <r3d:responsibilityEndDate></r3d:responsibilityEndDate>
                                    <r3d:institutionContact>comunicacio@crg.eu</r3d:institutionContact>
                            </r3d:institution>
                    <r3d:institution>
                <r3d:institutionName language="eng">European Molecular Biology Laboratory, European Bioinformatics Institute</r3d:institutionName>
                                    <r3d:institutionAdditionalName language="eng">EMBL-EBI</r3d:institutionAdditionalName>
                                <r3d:institutionCountry>EEC</r3d:institutionCountry>
                                    <r3d:responsibilityType>general</r3d:responsibilityType>
                                <r3d:institutionType>non-profit</r3d:institutionType>
                <r3d:institutionURL>https://www.ebi.ac.uk/</r3d:institutionURL>
                                    <r3d:institutionIdentifier>ROR:02catss52</r3d:institutionIdentifier>
                                    <r3d:institutionIdentifier>RRID:SCR_004727</r3d:institutionIdentifier>
                                    <r3d:institutionIdentifier>RRID:nlx_72386</r3d:institutionIdentifier>
                                <r3d:responsibilityStartDate></r3d:responsibilityStartDate>
                <r3d:responsibilityEndDate></r3d:responsibilityEndDate>
                                    <r3d:institutionContact>https://www.ebi.ac.uk/support/</r3d:institutionContact>
                            </r3d:institution>
                            <r3d:policy>
                <r3d:policyName>CRG Terms of Use</r3d:policyName>
                <r3d:policyURL>https://www.crg.eu/node/10699</r3d:policyURL>
            </r3d:policy>
                    <r3d:policy>
                <r3d:policyName>EBI Terms of Use</r3d:policyName>
                <r3d:policyURL>https://www.ebi.ac.uk/about/terms-of-use</r3d:policyURL>
            </r3d:policy>
                    <r3d:policy>
                <r3d:policyName>EGA Data Access Agreement</r3d:policyName>
                <r3d:policyURL>https://ega-archive.org/submission/dac/documentation#DAA</r3d:policyURL>
            </r3d:policy>
                    <r3d:policy>
                <r3d:policyName>EGA Data Use Conditions</r3d:policyName>
                <r3d:policyURL>https://ega-archive.org/data-use-conditions</r3d:policyURL>
            </r3d:policy>
                <r3d:databaseAccess>
            <r3d:databaseAccessType>open</r3d:databaseAccessType>
                    </r3d:databaseAccess>
                            <r3d:dataAccess>
                <r3d:dataAccessType>embargoed</r3d:dataAccessType>
                            </r3d:dataAccess>
                    <r3d:dataAccess>
                <r3d:dataAccessType>restricted</r3d:dataAccessType>
                                    <r3d:dataAccessRestriction>other</r3d:dataAccessRestriction>
                            </r3d:dataAccess>
                    <r3d:dataAccess>
                <r3d:dataAccessType>restricted</r3d:dataAccessType>
                                    <r3d:dataAccessRestriction>registration</r3d:dataAccessRestriction>
                            </r3d:dataAccess>
                            <r3d:dataLicense>
                <r3d:dataLicenseName>other</r3d:dataLicenseName>
                <r3d:dataLicenseURL>https://ega-archive.org/submission/dac/documentation#DAA</r3d:dataLicenseURL>
            </r3d:dataLicense>
                            <r3d:dataUpload>
                <r3d:dataUploadType>restricted</r3d:dataUploadType>
                                    <r3d:dataUploadRestriction>registration</r3d:dataUploadRestriction>
                            </r3d:dataUpload>
                            <r3d:dataUploadLicense>
                <r3d:dataUploadLicenseName>Submission statements</r3d:dataUploadLicenseName>
                <r3d:dataUploadLicenseURL>https://ega-archive.org/files/Submission_statement_V1.0.docx</r3d:dataUploadLicenseURL>
            </r3d:dataUploadLicense>
                            <r3d:software>
                <r3d:softwareName>unknown</r3d:softwareName>
            </r3d:software>
                <r3d:versioning>yes</r3d:versioning>
                    <r3d:api apiType="REST">https://ega-archive.org/metadata/how-to-use-the-api</r3d:api>
                            <r3d:pidSystem>none</r3d:pidSystem>
                <r3d:citationGuidelineURL></r3d:citationGuidelineURL>
                <r3d:enhancedPublication>yes</r3d:enhancedPublication>
        <r3d:qualityManagement>yes</r3d:qualityManagement>
                                <r3d:remarks>For each dataset that requires access control, there is a corresponding Data Access Committee (DAC) who determine access permissions. Data access requests are reviewed by the relevant DAC, not by the EGA.
Since 2013 and through a collaboration between the European Bioinformatics Institute and the Centre for Genomic Regulation, The European Genome-phenome Archive (EGA) is jointly managed and available at both institutions: EGA-EBI https://www.ebi.ac.uk/ega/ and EGA-CRG https://ega-archive.org/</r3d:remarks>
        <r3d:entryDate>2014-11-17</r3d:entryDate>
        <r3d:lastUpdate>2022-03-30</r3d:lastUpdate>
    </r3d:repository>
</r3d:re3data>