91 lines
9.1 KiB
XML
91 lines
9.1 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100000022</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">Comprehensive Epidemiological Data Resource</r3d:repositoryName>
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<r3d:additionalName language="eng">CEDR</r3d:additionalName>
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<r3d:repositoryURL>https://oriseapps.orau.gov/cedr/</r3d:repositoryURL>
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<r3d:description language="eng">The Comprehensive Epidemiologic Data Resource (CEDR) is the U.S. Department of Energy (DOE) electronic database comprised of health studies of DOE contract workers and environmental studies of areas surrounding DOE facilities. DOE recognizes the benefits of data sharing and supports the public's right to know about worker and community health risks. CEDR provides independent researchers and educators with access to de-identified data collected since the Department's early production years. Current CEDR holdings include more than 76 studies of over 1 million workers at 31 DOE sites. Access to these data is at no cost to the user.</r3d:description>
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<r3d:repositoryContact>cedr@orau.org</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:type>institutional</r3d:type>
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<r3d:size updated="2022-01-26">Analytic Data File Sets = 243 data files (63 studies), Working Data File Sets = 157 data files</r3d:size>
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<r3d:startDate>1964</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">4 Engineering Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">408 Electrical Engineering</r3d:subject>
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<r3d:subject subjectScheme="DFG">40803 Electrical Energy Generation, Distribution, Application</r3d:subject>
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<r3d:subject subjectScheme="DFG">44 Computer Science, Electrical and System Engineering</r3d:subject>
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<r3d:missionStatementURL>https://oriseapps.orau.gov/cedr/the-cedr-program.aspx</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Standard office documents</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Structured text</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:providerType>serviceProvider</r3d:providerType>
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<r3d:keyword>epidemiology</r3d:keyword>
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<r3d:keyword>health studies</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">Oak Ridge Institute for Science and Education</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">ORISE</r3d:institutionAdditionalName>
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<r3d:institutionCountry>USA</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://orise.orau.gov</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://orise.orau.gov/contact-us/default.aspx</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="eng">US Department of Energy</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">DOE</r3d:institutionAdditionalName>
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<r3d:institutionCountry>USA</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.energy.gov/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:01bj3aw27</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.energy.gov/contact-us</r3d:institutionContact>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>Federal Information Security Management Act (FISMA) Implementation Project</r3d:policyName>
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<r3d:policyURL>https://csrc.nist.gov/projects/risk-management</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>open</r3d:databaseAccessType>
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</r3d:databaseAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>registration</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>other</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://oriseapps.orau.gov/cedr/data-file-sets.aspx</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>restricted</r3d:dataUploadType>
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<r3d:dataUploadRestriction>other</r3d:dataUploadRestriction>
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</r3d:dataUpload>
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<r3d:software>
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<r3d:softwareName>unknown</r3d:softwareName>
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</r3d:software>
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<r3d:versioning>no</r3d:versioning>
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<r3d:citationGuidelineURL></r3d:citationGuidelineURL>
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<r3d:enhancedPublication>unknown</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:metadataStandard>
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<r3d:metadataStandardName metadataStandardScheme="DCC">Repository-Developed Metadata Schemas</r3d:metadataStandardName>
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<r3d:metadataStandardURL>http://www.dcc.ac.uk/resources/metadata-standards/repository-developed-metadata-schemas</r3d:metadataStandardURL>
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</r3d:metadataStandard>
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<r3d:remarks>Description: The Comprehensive Epidemiologic Data Resource (CEDR) is the Department of Energy's (DOE) electronic database comprised of health studies of DOE contract workers and environmental studies of areas surrounding DOE facilities. DOE recognizes the benefits of data sharing and supports the public's right to know about worker and community health risks. CEDR provides independent researchers and the public with access to de-identified data collected since the Department's early production years. Current CEDR holdings include more than 80 studies of over 1 million workers at 31 DOE sites. Access to these data is at no cost to the user. Most of CEDR's holdings are derived from epidemiologic studies of DOE workers at many large nuclear weapons plants, such as Hanford, Los Alamos, the Oak Ridge reservation, Savannah River Site, and Rocky Flats. These studies primarily use death certificate information to identify excess deaths and patterns of disease among workers to determine what factors contribute to the risk of developing cancer and other illnesses. In addition, many of these studies have radiation exposure measurements on individual workers. CEDR is supported by the Oak Ridge Institute for Science and Education (ORISE) in Oak Ridge, Tennessee. Now a mature system in routine operational use, CEDR's modern internet-based systems respond to thousands of requests to its web server daily. With about 1,500 Internet sites pointing to CEDR's web site, CEDR is a national user facility, with a large audience for data that are not available elsewhere.</r3d:remarks>
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<r3d:entryDate>2012-08-26</r3d:entryDate>
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<r3d:lastUpdate>2022-01-26</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |