97 lines
7.8 KiB
XML
97 lines
7.8 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100013925</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">TB Portals</r3d:repositoryName>
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<r3d:additionalName language="eng">Tuberculosis data science</r3d:additionalName>
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<r3d:repositoryURL>https://tbportals.niaid.nih.gov</r3d:repositoryURL>
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<r3d:repositoryIdentifier>RRID:SCR_016594</r3d:repositoryIdentifier>
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<r3d:description language="eng">NIAID’s TB Portals Program is a multi-national collaboration for TB data sharing and analysis to advance TB research.
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As a global consortium of clinicians, scientists, and IT professionals from 40 sites in 16 countries throughout eastern Europe, Asia, and sub-Saharan Africa, the TB Portals Program is a web-based, open-access repository of multi-domain TB data and tools for its analysis. Researchers can find linked socioeconomic/geographic, clinical, laboratory, radiological, and genomic data from over 7,500 international published TB patient cases with an emphasis on drug-resistant tuberculosis.</r3d:description>
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<r3d:repositoryContact>TBPortalsInfo@niaid.nih.gov</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated="2022-07-25">7.525 TB Cases; 3.305 genomic sequences; 9.020 Chest X-Ray and CT Images</r3d:size>
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<r3d:startDate>2018</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">204 Microbiology, Virology and Immunology</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20501 Epidemiology, Medical Biometry, Medical Informatics</r3d:subject>
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<r3d:subject subjectScheme="DFG">20502 Public Health, Health Services Research, Social Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">21 Biology</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">3 Natural Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">317 Geography</r3d:subject>
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<r3d:subject subjectScheme="DFG">31702 Human Geography</r3d:subject>
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<r3d:subject subjectScheme="DFG">34 Geosciences (including Geography)</r3d:subject>
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<r3d:missionStatementURL>https://tbportals.niaid.nih.gov/about</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Databases</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Images</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Scientific and statistical data formats</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Structured text</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:keyword>FAIR</r3d:keyword>
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<r3d:keyword>clinical data</r3d:keyword>
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<r3d:keyword>genomic data</r3d:keyword>
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<r3d:keyword>imaging data</r3d:keyword>
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<r3d:keyword>tuberculosis</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">National Institute of Allergy and Infectious Diseases</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">NIAID</r3d:institutionAdditionalName>
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<r3d:institutionCountry>USA</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.niaid.nih.gov/</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:043z4tv69</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>Data Sharing Policies</r3d:policyName>
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<r3d:policyURL>https://tbportals.niaid.nih.gov/data-sharing-policies</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>Data Use Agreement .</r3d:policyName>
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<r3d:policyURL>https://tbportals.niaid.nih.gov/pdf/TB-Portals-Data-Use-Agreement.pdf</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>Disclaimer</r3d:policyName>
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<r3d:policyURL>https://tbportals.niaid.nih.gov/disclaimer</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>open</r3d:databaseAccessType>
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</r3d:databaseAccess>
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<r3d:databaseLicense>
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<r3d:databaseLicenseName>Public Domain</r3d:databaseLicenseName>
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<r3d:databaseLicenseURL>https://tbportals.niaid.nih.gov/disclaimer</r3d:databaseLicenseURL>
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</r3d:databaseLicense>
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<r3d:dataAccess>
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<r3d:dataAccessType>open</r3d:dataAccessType>
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</r3d:dataAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>other</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>Public Domain</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://tbportals.niaid.nih.gov/data-sharing-policies</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>restricted</r3d:dataUploadType>
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<r3d:dataUploadRestriction>other</r3d:dataUploadRestriction>
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</r3d:dataUpload>
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<r3d:software>
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<r3d:softwareName>other</r3d:softwareName>
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</r3d:software>
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<r3d:versioning></r3d:versioning>
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<r3d:api apiType="other">https://datasharing.tbportals.niaid.nih.gov/#/data-api</r3d:api>
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<r3d:citationGuidelineURL>https://tbportals.niaid.nih.gov/pdf/TB-Portals-Acknowledgement-and-Citation-Guidelines.pdf</r3d:citationGuidelineURL>
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<r3d:enhancedPublication>unknown</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:remarks>In addition to viewing or downloading custom cohorts, physicians and health care researchers can easily compare these cohorts with statistical rigor in the TB Portals Data Exploration Portal (DEPOT) (https://depot.tbportals.niaid.nih.gov/). Partners: https://tbportals.niaid.nih.gov/partners</r3d:remarks>
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<r3d:entryDate>2022-07-22</r3d:entryDate>
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<r3d:lastUpdate>2022-07-29</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |