167 lines
14 KiB
XML
167 lines
14 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100012437</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="deu">Nationale Kohorte</r3d:repositoryName>
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<r3d:additionalName language="eng">GNC</r3d:additionalName>
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<r3d:additionalName language="eng">German National Cohort</r3d:additionalName>
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<r3d:additionalName language="deu">Gesundheitsstudie</r3d:additionalName>
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<r3d:additionalName language="deu">NAKO</r3d:additionalName>
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<r3d:repositoryURL>https://nako.de/</r3d:repositoryURL>
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<r3d:description language="eng">The German National Cohort (NAKO) has been inviting men and women aged between 20 and 69 to 18 study centers throughout Germany since 2014. The participants are medically examined and questioned about their living conditions. The GNC’s aim is to investigate the causes of chronic diseases, such as cancer, diabetes, cardiovascular diseases, rheumatism, infectious diseases, and dementia in order to improve prevention, early diagnoses and treatment of these very widely spread diseases.</r3d:description>
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<r3d:repositoryContact>https://nako.de/allgemeines/kontakt/</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated="2017-08-11">200.000 people in the age of 20-69</r3d:size>
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<r3d:startDate>2014</r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>deu</r3d:repositoryLanguage>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">201 Basic Biological and Medical Research</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20502 Public Health, Health Services Research, Social Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">21 Biology</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:missionStatementURL>https://nako.de/informationen-auf-englisch/</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Scientific and statistical data formats</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">Standard office documents</r3d:contentType>
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<r3d:contentType contentTypeScheme="parse">other</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:keyword>cancer</r3d:keyword>
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<r3d:keyword>cardiovascular disease</r3d:keyword>
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<r3d:keyword>chronic infections</r3d:keyword>
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<r3d:keyword>cohort study</r3d:keyword>
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<r3d:keyword>dementia illness</r3d:keyword>
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<r3d:keyword>diabetes</r3d:keyword>
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<r3d:keyword>life-style factors</r3d:keyword>
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<r3d:keyword>mobility impairments</r3d:keyword>
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<r3d:keyword>socio-economics factors</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="deu">Bundesministerium für Bildung und Forschung</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">BMBF</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="eng">Federal Ministry of Education and Research</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.bmbf.de/en/index.html</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:04pz7b180</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:SCR_005066</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:nlx_143994</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.bmbf.de/en/contact.php</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Deutsches Krebsforschungszentrum</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">DKFZ</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="eng">German Cancer Research Center</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.dkfz.de/en/index.html</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:04cdgtt98</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Deutsches Krebsforschungszentrum, Epidemiologie von Krebserkrankungen</r3d:institutionName>
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<r3d:institutionAdditionalName language="deu">DKFZ, Epidemiologie von Krebserkrankungen</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="eng">Deutsches Krebsforschungszentrum, Division of Cancer Epidemiology</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.dkfz.de/en/epidemiologie-krebserkrankungen/index.php</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.dkfz.de/de/epidemiologie-krebserkrankungen/mitarbeiter/kontakt/epidemiologie_krebserk.php</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Ernst-Moritz-Arndt-Universität Greifswald, Universitätsmedizin Greifswald, Institut für Community Medicine</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">Ernst-Moritz-Arndt-University of Greifswald, University Hospital, Institute for Community Medicine</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>http://www2.medizin.uni-greifswald.de/icm/</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>nako@uni-greifswald.de</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Helmholtz Zentrum München</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">German Research Center for Environmental Health</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.helmholtz-muenchen.de/en/helmholtz-zentrum-muenchen/index.html</r3d:institutionURL>
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<r3d:institutionIdentifier>ROR:00cfam450</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:SCR_011282</r3d:institutionIdentifier>
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<r3d:institutionIdentifier>RRID:nlx_152050</r3d:institutionIdentifier>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Helmholtz-Zentrum München, Deutsches Forschungszentrum für
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Gesundheit und Umwelt (GmbH), Institut für Epidemiologie II</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">Helmholtz Zentrum München - German Research Center for Environmental Health EPI II Epidemiology II</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://www.helmholtz-muenchen.de/epi/index.html</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://www.helmholtz-muenchen.de/en/ueber-uns/service/kontakt/index.html</r3d:institutionContact>
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</r3d:institution>
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<r3d:institution>
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<r3d:institutionName language="deu">Verein NAKO e.V.</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">GNC</r3d:institutionAdditionalName>
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<r3d:institutionAdditionalName language="eng">German National Cohort</r3d:institutionAdditionalName>
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<r3d:institutionCountry>DEU</r3d:institutionCountry>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://nako.de/impressum/</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>geschaeftsstelle@nako.de</r3d:institutionContact>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>Datenschutz in der NAKO</r3d:policyName>
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<r3d:policyURL>https://nako.de/allgemeines/was-ist-die-nako-gesundheitsstudie/datenschutz-in-der-nako/</r3d:policyURL>
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</r3d:policy>
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<r3d:policy>
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<r3d:policyName>Use and Access Policy</r3d:policyName>
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<r3d:policyURL>https://nako.de/wp-content/uploads/2015/07/Nutzungsordnung-zur-Nutzung-von-Daten-und-Probenmaterial-der-Nationalen-Kohorte.pdf</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>closed</r3d:databaseAccessType>
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</r3d:databaseAccess>
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<r3d:databaseLicense>
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<r3d:databaseLicenseName>Copyrights</r3d:databaseLicenseName>
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<r3d:databaseLicenseURL>https://nako.de/wp-content/uploads/2015/07/Nutzungsordnung-zur-Nutzung-von-Daten-und-Probenmaterial-der-Nationalen-Kohorte.pdf</r3d:databaseLicenseURL>
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</r3d:databaseLicense>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>other</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>Copyrights</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://nako.de/wp-content/uploads/2015/07/Nutzungsordnung-zur-Nutzung-von-Daten-und-Probenmaterial-der-Nationalen-Kohorte.pdf</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>closed</r3d:dataUploadType>
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</r3d:dataUpload>
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<r3d:software>
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<r3d:softwareName>unknown</r3d:softwareName>
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</r3d:software>
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<r3d:versioning></r3d:versioning>
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<r3d:pidSystem>none</r3d:pidSystem>
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<r3d:citationGuidelineURL></r3d:citationGuidelineURL>
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<r3d:aidSystem>none</r3d:aidSystem>
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<r3d:enhancedPublication>unknown</r3d:enhancedPublication>
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<r3d:qualityManagement>unknown</r3d:qualityManagement>
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<r3d:remarks>Central Biorepository : https://nako.de/allgemeines/der-verein-nako-e-v/organisationseinheiten/zentrale-bioprobenbank/</r3d:remarks>
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<r3d:entryDate>2017-08-11</r3d:entryDate>
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<r3d:lastUpdate>2021-02-26</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |