79 lines
6.3 KiB
XML
79 lines
6.3 KiB
XML
<?xml version="1.0" encoding="utf-8"?>
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<!--re3data.org Schema for the Description of Research Data Repositories. Version 2.2, December 2014. doi:10.2312/re3.006-->
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<r3d:re3data xmlns:r3d="http://www.re3data.org/schema/2-2" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.re3data.org/schema/2-2 http://schema.re3data.org/2-2/re3dataV2-2.xsd">
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<r3d:repository>
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<r3d:re3data.orgIdentifier>r3d100011820</r3d:re3data.orgIdentifier>
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<r3d:repositoryName language="eng">CaPSURE</r3d:repositoryName>
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<r3d:additionalName language="eng">Cancer of the Prostate Strategic Urologic Research Endeavor</r3d:additionalName>
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<r3d:repositoryURL>https://urology.ucsf.edu/research/cancer/capsure</r3d:repositoryURL>
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<r3d:description language="eng">CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995.
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CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands.
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There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.</r3d:description>
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<r3d:repositoryContact>https://urology.ucsf.edu/people/peter-r-carroll</r3d:repositoryContact>
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<r3d:type>disciplinary</r3d:type>
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<r3d:size updated=""></r3d:size>
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<r3d:startDate></r3d:startDate>
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<r3d:endDate></r3d:endDate>
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<r3d:repositoryLanguage>eng</r3d:repositoryLanguage>
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<r3d:subject subjectScheme="DFG">2 Life Sciences</r3d:subject>
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<r3d:subject subjectScheme="DFG">205 Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20514 Hematology, Oncology, Transfusion Medicine</r3d:subject>
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<r3d:subject subjectScheme="DFG">20523 Urology</r3d:subject>
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<r3d:subject subjectScheme="DFG">22 Medicine</r3d:subject>
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<r3d:missionStatementURL>https://urology.ucsf.edu/about</r3d:missionStatementURL>
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<r3d:contentType contentTypeScheme="parse">Raw data</r3d:contentType>
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<r3d:providerType>dataProvider</r3d:providerType>
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<r3d:keyword>CEASAR Comparative Effectiveness Analysis of Surgery and Radiation.</r3d:keyword>
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<r3d:keyword>Gleason-Score</r3d:keyword>
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<r3d:keyword>PSA</r3d:keyword>
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<r3d:keyword>cancer</r3d:keyword>
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<r3d:keyword>oncology</r3d:keyword>
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<r3d:keyword>prostate</r3d:keyword>
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<r3d:keyword>survey data</r3d:keyword>
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<r3d:keyword>tumor</r3d:keyword>
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<r3d:institution>
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<r3d:institutionName language="eng">UCSF Department of Urology</r3d:institutionName>
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<r3d:institutionAdditionalName language="eng">University of California San Francisco, Department of Urology</r3d:institutionAdditionalName>
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<r3d:institutionCountry>USA</r3d:institutionCountry>
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<r3d:responsibilityType>funding</r3d:responsibilityType>
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<r3d:responsibilityType>general</r3d:responsibilityType>
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<r3d:responsibilityType>technical</r3d:responsibilityType>
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<r3d:institutionType>non-profit</r3d:institutionType>
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<r3d:institutionURL>https://urology.ucsf.edu/</r3d:institutionURL>
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<r3d:responsibilityStartDate></r3d:responsibilityStartDate>
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<r3d:responsibilityEndDate></r3d:responsibilityEndDate>
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<r3d:institutionContact>https://urology.ucsf.edu/people/peter-r-carroll</r3d:institutionContact>
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</r3d:institution>
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<r3d:policy>
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<r3d:policyName>Research Guidelines</r3d:policyName>
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<r3d:policyURL>https://urology.ucsf.edu/sites/urology.ucsf.edu/files/uploaded-files/attachments/uroloncdatasets_presentfindings_aug2015_0.pdf</r3d:policyURL>
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</r3d:policy>
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<r3d:databaseAccess>
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<r3d:databaseAccessType>restricted</r3d:databaseAccessType>
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<r3d:databaseAccessRestriction>other</r3d:databaseAccessRestriction>
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</r3d:databaseAccess>
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<r3d:dataAccess>
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<r3d:dataAccessType>restricted</r3d:dataAccessType>
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<r3d:dataAccessRestriction>institutional membership</r3d:dataAccessRestriction>
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</r3d:dataAccess>
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<r3d:dataLicense>
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<r3d:dataLicenseName>other</r3d:dataLicenseName>
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<r3d:dataLicenseURL>https://ucsf.us.qualtrics.com/jfe/form/SV_2beAaQ5YBmmGxNj</r3d:dataLicenseURL>
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</r3d:dataLicense>
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<r3d:dataUpload>
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<r3d:dataUploadType>closed</r3d:dataUploadType>
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</r3d:dataUpload>
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<r3d:software>
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<r3d:softwareName>unknown</r3d:softwareName>
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</r3d:software>
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<r3d:versioning></r3d:versioning>
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<r3d:citationGuidelineURL></r3d:citationGuidelineURL>
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<r3d:enhancedPublication>yes</r3d:enhancedPublication>
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<r3d:qualityManagement>yes</r3d:qualityManagement>
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<r3d:remarks>CaPSURE is covered by Thomson Reuters Data Citation Index.</r3d:remarks>
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<r3d:entryDate>2016-02-23</r3d:entryDate>
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<r3d:lastUpdate>2019-01-09</r3d:lastUpdate>
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</r3d:repository>
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</r3d:re3data> |