r3d100012215 PRO-ACT Pooled Resource Open-Access ALS Clinical Trials Database https://nctu.partners.org/ProACT/ The PRO-ACT platform houses the largest ALS clinical trials dataset ever created. It is a powerful tool for biomedical researchers, statisticians, clinicians, or anyone else interested in "Big Data." PRO-ACT merges data from existing public and private clinical trials, generating an invaluable resource for the design of future ALS clinical trials. The database will also contribute to the identification of unique observations, novel correlations, and patterns of ALS disease progression, as well as a variety of still unconsidered analyses. More than 600,000 people around them world are battling ALS. The disease strikes indiscriminately, and typically patients will die within 2-5 years following diagnosis. Currently, there are no effective treatments or a cure for ALS. Users of PRO-ACT are helping to accelerate the discovery, development, and delivery of ALS treatments, which will provide hope to patients and their families. https://nctu.partners.org/ProACT/Document/DisplayLatest/8 disciplinary over 8500 ALS patient records from multiple completed clinical trials 2012 eng 2 Life Sciences 206 Neurosciences 22 Medicine https://nctu.partners.org/ProACT/Document/DisplayLatest/5 Plain text Raw data Standard office documents other dataProvider Amyotrophic Lateral Sclerosis Lou Gehrig's disease clinical trial neurodegenerative illness psychometric assessment ALS Therapy Alliance ATA USA funding non-profit http://alstherapyalliance.org/index.php http://alstherapyalliance.org/index.php/contact-us.html Massachusetts General Hospital, Neurological Clinical Research Institute NCRI USA general technical non-profit http://www.ncrinstitute.org/ ALSresearch@partners.org Northeast ALS Consortium NEALS Northeast Amyotrophic Lateral Scierois Consortium USA funding general non-profit https://www.neals.org/ https://www.neals.org/about-us/contact-us Novartis USA funding non-profit https://www.novartis.com/ https://www.novartis.com/about-us/contact Prize4Life ISR general non-profit http://www.prize4life.org.il/en http://prize4life.org.il/en/contact/ Regeneron Pharmaceuticals, Inc USA funding non-profit https://www.regeneron.com/ https://www.regeneron.com/contact Sanofi FRA funding non-profit https://en.sanofi.com/ https://en.sanofi.com/contact/contact.aspx Teva Pharmaceutical Industries, Ltd TEVA ISR funding non-profit https://www.tevapharm.com/ https://www.tevapharm.com/contact_us/ Terms and Conditions https://nctu.partners.org/ProACT/Document/DisplayLatest/1 open restricted registration other https://nctu.partners.org/ProACT/Document/DisplayLatest/1 closed unknown none https://nctu.partners.org/ProACT/Document/DisplayLatest/6 none unknown unknown 2016-11-08 2019-01-22